What help is available?
Many of the symptoms and subsequent problems can be effectively
alleviated by your consultant or G.P. In addition, other professionals
such as the physiotherapist, occupational therapist, nurse, social
worker, speech therapist and dietician, can be an invaluable source of
help. A range of leaflets dealing with specific problem areas is
available from the
association on request.
What is Rilutek?
Rilutek (riluzole) is the first and, to date, only drug licensed for
the treatment of Motor Neurone Disease. It is not a cure, it does not
prevent, halt or reverse the disease but it has been shown to have an
effect in extending life in both the limb and bulbar onset forms of
MND. In studies, patients taking Rilutek were shown to have an
increased life expectancy.
This is variable from three to five years (or occasionally longer)
after onset, depending on the activity of the disease and the particular
muscle groups affected.