IMNDA Statement on passing of Charlie Bird RIP

12 Mar 2024

Statement on behalf of Lillian McGovern, CEO, IMNDA:


“We at the IMNDA are deeply saddened to learn of the passing of the wonderful and truly inspirational Charlie Bird. On behalf of our team, I extend our heartfelt condolences to Charlie’s wife Claire, children Neasa and Orla, his grandchildren and of course his beloved dog Tiger. 

Charlie’s impact on the MND community in Ireland and even further afield is immeasurable. His ability to extend the hand of friendship, as he so beautifully phrased it, and bring together thousands of people in every part of the country for Climb with Charlie was incredible. It resulted in millions being raised and marked the beginning of what was, and continued to be, an unwavering commitment to fight MND; to support people living with MND and their families; and to make a meaningful difference.

We will forever be grateful for the impact Charlie has made for the IMNDA, not only in terms of funding, which has so greatly helped us improve how we can support families; but also in terms of the impact his presence has had on creating awareness, getting people to sit up and take notice of what is truly a devastating disease. In many ways, Charlie started the important conversation, and it is up to all of us to continue it in his honour.

Charlie has truly left an enduring legacy, whose impact will be written in history and will be felt by all of us for many, many years to come. The world has lost a real hero, but his fight for a brighter future for the MND community will continue.

Rest in peace, Charlie Bird.”