Privacy Policy

We at Irish Motor Neurone Disease Association (IMNDA) respect your right to privacy. The purpose of this Privacy Statement is to outline how we deal with any personal data you provide to us while visiting this website. This Statement applies only to, the website of the IMNDA.


The IMNDA will store any personal information collected from the website in accordance with applicable Irish and European Data Protection legislation. The IMNDA has taken appropriate measures to keep secure and personal information given by users of this site. Information will not be supplied to any third party, unless prior permission has been provided by the owner.


The information collected on this site includes:

  • Non-personal data:
    • A user’s IP address, which is automatically logged by our web server. IP addresses are used to observe users’ interests in this website (number of visits, etc).
    • Cookies, which are very small text files saved to your computer used to track user navigation around a website. At, cookies may be used to store information on which features have been seen by a user. They are not cross-referenced with any other information such that an individual person could be identified. We use this non-personal data in an aggregate form to get a better understanding of where our visitors come from and to help us better design and organise our website.
  • Personal data
    • E-mail addresses and/or other contact details which users voluntarily provide in order to:
      • Receive information from IMNDA e.g. e-newsletter
      • Process membership/ donations/ shop purchases
      • Request information from IMNDA

If you click on any of the email links on the site or use the contact or register forms, you will be submitting your email address to us. Information submitted to us by email may be retained.


The IMNDA does not use or disclose information about your individual visits to our web site or other information that you voluntarily give us, such as your name, address, e-mail address or telephone number, to any third parties except for the use of completing a donation or transaction that you initiate.

We may provide non-personal data to third parties in aggregate form. For example, we might inform third parties regarding the number of unique users who visit our website, the amount of visits to the site per month or the activities that visitors to our website engage in while on our website. We will not disclose your personal data to third parties.


You have the right to access your information held by the IMNDA and where necessary, to have it amended, deleted, transferred or restricted. You also have the right to withdraw consent to our using your data or to object to our processing of your data in certain circumstances. To exercise any of these rights please contact us at


This website contains links to external websites. Links are all clearly visible, differing from the regular text on the website. This privacy statement does not apply to these sites nor are we responsible for the content and practices of any of these websites.


Personal data is held on secure servers. While no data transmission over the Internet can be guaranteed to be 100% secure, the IMNDA has taken all reasonable steps to protect your personal data.


Google Analytic Cookies

We use Google Analytics to collect information about how people use this site. Google Analytics stores information about what pages you visit, how long you are on the site, how you got here and what you click on. We do not collect or store your personal information (e.g. your name or address) so this information cannot be used to identify who you are. Google provides further information here.

Google AdWords Remarketing

We also use 3rd party vendor re-marketing tracking cookies, including the Google AdWords tracking cookie. This means we will continue to show ads to you across the internet, specifically on the Google Content Network (GCN). As always we respect your privacy and are not collecting any identifiable information through the use of Google’s or any other 3rd party remarketing system.

The third-party vendors, including Google, whose services we use – will place cookies on web browsers in order to serve ads based on past visits to our website. – Third party vendors, including Google, use cookies to serve ads based on a user’s prior visits to your website. This allows us to make special offers and continue to market our services to those who have shown interest in our service.


Within your browser you can choose whether you wish to accept cookies or not. Your browser will offer you the choice to accept, refuse or delete cookies at all times, or those from providers that website owners use (“third party cookies”), or those from specific websites.


We are committed to protecting your personal data and right to privacy. We will always keep your personal data safe and comply with applicable data protection legislation. For more on our Data Protection Policy please email or download IMNDA Data Protection latest policy (2018).

This policy was last updated on 22 May 2018.