New Family Supports available to help people with MND and their families
At our annual conference in Cork this October, the IMNDA team was delighted to share news of a new range of supports for families living with MND. We are now pleased to say these supports are fully up and running and available to you through consultation with your MND nurse.
Thanks to a once-off funding surplus this year, we’ve been able to invest directly in areas that families tell us make the biggest difference day to day. These new measures aim to provide timely, practical relief and include:
- Cost of Living Fund:Flexible financial support to help with essential expenses such as energy bills, transport, respite care, or home adaptations to a max. of EUR 500 per family per year.
- Expanded Night Nurse Support:Three nights of night nursing care available at any stage of MND, giving carers vital rest.
- Communication Supports Programme: Access to communication aids helping people maintain their voice and independence as assessed by a speech an language therapist
- Essential Equipment:Loan of essential equipment in your home, as requested by health care professional.
- Travel grant: Increased to EUR 200 to assist with getting to and from appointments.
- HSE Homecare top-up: IMNDA will top up homecare hours by EUR 200
These new supports are about listening to families and responding to what matters most.
As we look to 2026, IMNDA remains focused on ensuring no family faces MND alone and that every euro raised continues to go where it’s needed most.
Please visit here on our website for more information or speak to your MND nurse.
Alternatively, please email services@imnda.ie
