You have received a diagnosis of MND, and need to know where to go for help. If your everyday living is affected by MND you need to have a social care assessment. For more information, contact the IMNDA offices on.
How We Can Help
The IMNDA is here to help once you or someone you know has been diagnosed with MND. We are dedicated to working on behalf of and supporting people living with MND, their families and carers. Whether yourself or someone you know has been diagnosed with MND our information services can make a real difference in how you cope going forward. We work closely with local service providers to ensure you get the care and support you need.
You can register yourself or a healthcare professional or a family member can register on your behalf once your consent is given. Registration is free and details are completely confidential.
To register you can contact the IMNDA on Freefone 1800 403 403 or you can send us an email to email@example.com or please click here to register online. We will ask for a small amount of detail for our registration form which will include: contact details, date and place of diagnosis and symptoms.
Once this is completed, one of our MND nurses will aim to contact you within a week unless you request no contact.
When you register with the IMNDA you can automatically avail of the below services free of charge
- Access to one of our 6 MND Nurses directly employed by the association
- Access to specialised equipment on a loan basis to all our service users once recommended by your OT, SLT, PHN, MND Nurse
- Access to a home care grant once recommended by the MND Nurse and where a HSE home care package is already in place
- Counselling sessions for the person living with MND and one other member of their family
- Bereavement counselling for two family members or caregivers of an IMNDA client
- Information Sheets - available to download here
Note: All information gathered is held in a highly confidential manner
The IMNDA Nursing Service
Eithne, Maire, Kathryn, Fidelma and Louise are the IMNDA nurses, who work alongside the IMNDA and consultant neurologists throughout the country. As well as attending MND clinics, the nurses travel throughout the country providing nursing support to people who have been diagnosed with MND. They provide support to their families and carers by means of home visits, a help line and on-line contact. All three nurses have a vast level of experience working within the field of neurology and all three previously worked together on a neurological ward in Beaumont hospital.
Being nurses that specialise in Motor Neurone Disease means they play active roles in both patient and health care professional education to ensure the highest level of patient care is being delivered at all times.
The nursing service is active in its total approach to care, embracing physical, emotional, social and spiritual elements. It focuses on enhancement of quality of life for the client and support for the family and includes the management of distressing symptoms and provision of support and care throughout the journey of MND.
The MND nurses are central to the person living with MND and their family. They are also vital for links out to all of the services and health care professionals. They endeavour to co-ordinate a service that provides continuity of care for a case load of patients in collaboration with local health care professionals and carers, especially those with specific palliative care needs. The role applies to acute and community care settings. The nurses act as an informed resource for health and social care professionals, involved in the care of the clients living with MND.
The nurses have designated areas to ensure a continuity of care and equitable service throughout the country.
The IMNDA provides financial assistance towards home care for people with MND. To arrange home care assistance for a person with MND, please contact us on Freefone 1800 403 403. We do not recommend any specific carers or care agencies but please find below details of agencies some of our client group have previously used. To find a carer, you can also ask your local public health nurse or health centre.
Home Instead Senior Care
Home Instead Senior Care® is a HSE approved provider of home care in all areas of the country. Our professional CAREGivers can provide 24 Hour Companionship & Personal Care Services together with Motor Neurone, Alzheimer’s & other Dementia Support as well as Palliative Care and Hospital Discharge Assistance. Neither giving nor receiving care is easy. Home Instead Senior Care® puts relationships first in order to protect the dignity of those receiving care, to support those providing care; ultimately enhancing the quality of life of both those we care for and their families.
Since 2005 Comfort Keepers Home Care has been providing homecare services across the country, supporting clients and families to live at home independently. Our home care services support our clients to remain in the comfort of their own home and communities. At Comfort Keepers team we have a team of dedicated healthcare professionals which include Nurses, Social Workers and Social Care Workers who oversee your care needs and support the carer team in the community to ensure superior care and compassion is provided to you or your loved one.
We are a HSE approved provider of care since 2012. We are committed to quality care delivery and best practice standards. For over 10 years now, we have achieved ISO 9001 accreditation and EIQA certification and achieving EIQA gold medal standard in 2015. We are active members of our industry body Home and Community Care Ireland and support the call for regulation within the sector. We value our employees and our care teams and provide great support and training through our QQI accredited training centre. Our training team have also supported many clients and families who wish to be able to care for there loved one safely.
If you would like to avail of a no obligation, consultation to discuss you or your loved one’s care needs in more detail please contact us.
Private Home Care
Private HomeCare is Ireland’s longest established private home care provider. Our ethos remains unchanged since we started in 1989: “we care for others as we would like to be cared for ourselves”. We were the first home care company in Ireland to be awarded the international standard quality award, ISO, and have retained it every year since. Our commitment to quality has never wavered. We are not a franchise business, and our management team have been in place since 1989 so we have vast experience of home care, for people of all ages and abilities. In 2010, Private HomeCare became part of Cpl. So now we offer both a boutique specialist service based on our extensive care experience, backed up with the supports and resources of a large company. You get the best of both. In 2016, we opened our own training department where we train professional and family carers on a variety of courses, including the full QQI range of courses for care, through to Major awards. We invite those in the IMNDA community to contact us for a discrete and exploratory chat to see how we can support you in your own home. You are not alone. We are here to help.
Caremark provides care and support for anyone who wishes to remain in their own home, regardless of their illness, disability or situation. Caremark currently offers care and support in Dublin, Cork, Galway, Kildare, Westmeath, Longford and Roscommon.
60 Lower Baggot Street,
Phone: 01 602 4711
Irish Hospice Foundation
The Irish Hospice Foundation is a not-for-profit organisation that promotes the hospice philosophy and supports the development of hospice/palliative care. The Irish Hospice Foundation offers assistance for night nursing. The Irish Hospice Foundation provides funding for up to 14 nights’ nursing for patients, who are in the terminal phase of illness, are being cared for at home, and are receiving palliative home-care. Referrals must come from a specialist palliative care nurse or consultant – not from a G.P, public health nurse or family member. For more information on the assistance they offer click here.
Morrison Chambers (4th floor)
32 Nassau Street
Myhomecare.ie specialises in providing homecare and community services nationwide. Our services include home help for as little as 1-2 hours per day and up to a 24 hour nursing care package. Our services include but are not limited to; disability care, paediatrics, mental health, dementia/Alzheimer’s, IV therapy in the home and older person services. We provide a nationwide service with offices in Dublin, Cork, Galway & Dundalk, Freefone 1800 400 900 www.myhomecare.ie
Homecare Independent Living (HCIL)
Homecare Independent Living (HCIL) is a national leader in providing homecare services to clients, enabling them to continue living with dignity and independence, in their own homes. Our services include 24 hour domiciliary care, peripatetic care, floating support and nursing, as well as respite care.
Supported by a team of over 1,000 staff and more than 20 years in the market, with a reputation built on trust, quality and innovation, our clients are at the center of everything we do at HCIL.
Be Independent Home Care
Be Independent Home Care is a Nurse Owned and Managed Home Care Company. Our team of qualified and supervised Home Care Assistants operate in homes throughout Dublin. We are approved HSE Homecare Providers and our team of Care Assistants are fully trained, reference checked, insured and Garda Vetted and work in strict adherence to our policies, procedures and guidelines.
We recognise that each one of our clients has individual needs and so tailor our services to each client by carrying out a full initial needs assessment. Often our clients simply need help with things like washing, dressing, mobility assistance or meal preparation and as our home care services range from just a few hours a day up to overnight or full time care, this allows you to decide how much support you require.
The Multi-Disciplinary Team (MDT) comprises of a group of clinical professionals with specific expertise in MND who work in a hospital and community setting. The IMNDA links in with these healthcare professionals but they are not employed by us.
They include; Neurologist, Occupational Therapist (OT), Public Health Nurse (PHN), Social Worker, Physiotherapist, Speech & Language Therapist (SLT), Dietician, Clinical Psychologist, Counsellor and GP. They work as an integrated unit and their aim is to provide flexible and rapid accessible care for people with MND, their families and carers. The type of multidisciplinary expertise required by people with MND will vary depending on the stage of the illness. They can help with difficulties with every day things such as personal care, climbing the stairs, mobility support etc.
Diagnosis of a fatal illness with a shortened life expectancy can lead to significant stress. Appropriate referral to a qualified counselling service is essential for people with MND and families experiencing such difficulties.
The IMNDA provides funding for counselling sessions for registered clients. For more information, contact the office on Freefone 1800 403 403.
Caring for Care Givers
A "Family Caregiver" is anyone who provides any type of physical and/or emotional care for someone with MND who is being cared for at home. There are different types of family caregivers:
- Adult children
- Family members
Caring for Carers , is a new website dedicated to carers and family specifically caring for those with palliative care needs. The website consists of 8 different sections and contains videos, downloads, links and lots of practical information to support family carers as they support a person who needs palliative care.
Caring for Carers was created by a team led by Professor Peter Hudson from Queen’s University Belfast in collaboration with AIIHPC and a working group made up of family carers and former carers, carer organisations, health and social care professionals and charities. The site is hosted on www.thepalliativehub.com an all-island gateway to palliative care information. For more see HERE.